Eva Green is inviting you all to be part of finding a cure for Dylan and other children affected with MSD by spreading the word and donating to help them have a chance at life.
Dylan Finglas is a happy, beautiful 4 year old Penny Dreadful family member (Dylan’s father Alan is a Standby Carpenter on the show) whose quality of life has been affected by the clinically devastating rare fatal disease called Multiple Sulfatase Deficiency or MSD. Children with this condition are missing essential enzyme activity for normal cellular functions. Over time, cells in their bodies, including brain cells, clog up and become toxic. This results in devastating effects on the whole body and the central nervous system. MSD leads to years of pain, severe disability and ultimately death – usually before 10 years of age. This condition affects both genders and all races in every country around the world. It is estimated that around 1 in 1000 people carries the recessive gene for this disease.
Gene Therapy at The Telethon Institute of Genetics and Medicine in Italy has successfully stopped MSD in lab tests. Funding is critical and urgently needed to push clinical advancements to human stages as soon as possible. There are many research areas that need funding to advance. Every donation counts to save Dylan and all children with MSD around the world. Time is of the essence in order to treat these children before significant symptoms of the condition progress. Your kindness will change lives!
For more information on Dylan & MSD and to send a donation, visit www.SavingDylan.com. Follow Dylan’s story on Instagram at @savingdylan. Kindly use the hashtag #SavingDylan when posting on social media platforms.
Eva Green is in solidarity to #cutAIDSshort with L’Oréal and Coiffeurs Contre Le SIDA
Hairdressers Against AIDS is a prevention programme launched by L’Oréal Professional Products in partnership with UNESCO. For almost 15 years, Hairdressers Against AIDS have been raising awareness & preventing HIV/AIDS through its network of hairdressers around the world. Going even further this year, the programme contribute to drive donations to support HIV/AIDS research, by capitalizing on its strong and engaged community.
Great progresses have been made to turn back the tide of HIV/AIDS. However education & prevention remain more crucial than ever, and research is ESSENTIAL.
With #cutAIDSshort, you will support Institut Pasteur’s scientists. From the search of a vaccine to the conception of new therapeutic approaches enabling patients to be in complete remission, researchers are mobilized on all fronts.
To learn more, kindly visit : Hairdressers Against AIDS
To make donations: #cutAIDSshort
Let’s #cutAIDSshort together!